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CLIENT CASE STUDY


Exploring the potential of patient-generated health data

 

 

The U.S. Department of Health and Human Services – Office of the National Coordinator for Health Information Technology (ONC) is helping to explore the potential of PGHD.


Whether monitoring chronic illnesses or tracking fitness levels, consumers have become much more interested in capturing their own health data—and engaging more in their own wellness. This unprecedented collection of information can potentially provide clinicians with a more holistic view of patients’ lives outside the clinical setting.

PUTTING PGHD UNDER THE MICROSCOPE

The U.S. Department of Health and Human Services - Office of the National Coordinator for Health Information Technology (ONC) is helping to explore the potential of PGHD. After identifying PGHD use as an important issue for advancing patient engagement, care delivery, and research, ONC initiated a series of activities to gain more information about its value and approaches to implementing it. Building on prior policy work, ONC began collaborating with Accenture Federal Services in 2015. The goal: to dig deep into what’s possible, what’s standing in the way, and options for overcoming those barriers.

Accenture conducted research and industry outreach to better understand how organizations are currently using PGHD, as well as the challenges impeding its successful utilization. The project team explored seven different policy topic areas relevant to PGHD, developed extensive environmental scans and literature reviews, met with more than 60 industry subject-matter experts, and coordinated two pilot demonstrations to test the findings in a real-world clinical setting. The research helped to identify best practices, gaps, and opportunities for progress in the capture, use, and sharing of PGHD. 


DOWNLOAD THE PAPER [PDF]

PATIENT-GENERATED HEALTHCARE WHITE PAPER

The resulting white paper, Conceptualizing a Data Infrastructure for the Capture, Use, and Sharing of Patient-Generated Health Data in Care Delivery and Research through 2024, suggests actions that patients and caregivers, clinicians, researchers, policymakers, developers and standards bodies, and payers and employers can take to collaborate and advance the use of PGHD. Ultimately, it lays the groundwork for creating a well-defined yet flexible policy framework to help in unleashing PGHD’s potential for all healthcare stakeholders.

Recognizing the need for guidance and best practices for incorporating PGHD into care delivery and research, the team also created a Practical Guide that offers suggested practices and questions to consider when implementing PGHD capture and use.

ENABLING CHANGE

While the team focused on articulating the challenges, they also worked to devise potential solutions. To advance the use of PGHD, the white paper proposes a series of “enabling actions” for everyone in the healthcare ecosystem.

PILOTING PGHD IN REAL-WORLD SETTINGS

An important goal of the project was to test the initial findings and recommendations in the real world for inclusion in the final white paper. Accenture engaged with two digital health technology organizations and their care delivery partners to see how the concepts would perform with actual clinicians and patients:

The pilot engaged patients in identifying and collecting their symptoms, pain ratings, activity levels, and self-assessments of how they felt compared to the previous day. TapCloud and AMITA Health then incorporated that data into a dashboard that clinical staff reviewed. The pilot demonstration showed how a single technology platform enables effective use of PGHD for a variety of medical conditions, clinical settings, clinician roles, and patient populations. Results included a readmission rate drop from a baseline of 5.1 percent to 2 percent for the Orthopedic surgery TapCloud platform users.
Historically, many diabetes patients have had to keep written logs of their at-home test results. It’s virtually impossible for a physician to review and glean meaningful insights from binders of paper-based data. In the pilot, patients using traditional glucometers were able to simply snap a smart-phone picture of their readings. The Validic technology converted that information into structured data that was then fed into existing workflows and systems. With convenient access to the data, clinicians were able to more readily spot trends and advise patients on ways to improve their levels. The pilot demonstration included ethnography to identity areas of improvement to further patient and provider engagement. Key learnings included the need to proactively engage and sustain patients in ways that could be scalable and sustainable by the healthcare provider.

STUDYING POLICY AREAS

At the heart of the project is the team’s examination of seven PGHD policy topic areas:

FLEXIBLE ROADMAP FOR NEW FRONTIERS

Accenture’s work with ONC affirmed the potential value of PGHD in care delivery and health research and provides flexible and actionable recommendations for how healthcare stakeholders can collaborate to realize that value together.

CONTACT US


Emily Mitchell

Senior Manager, Accenture Federal Services


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